tag:blogger.com,1999:blog-7291854236770250226.comments2023-05-21T12:45:11.268-07:00The New Ampligen DiariesKelvin Lordhttp://www.blogger.com/profile/15444830152654364397noreply@blogger.comBlogger106125tag:blogger.com,1999:blog-7291854236770250226.post-65046492433100269682013-02-28T21:23:41.172-08:002013-02-28T21:23:41.172-08:00Oh friend, how I needed a belly laugh. The smile s...Oh friend, how I needed a belly laugh. The smile started deep within as I read and then the smile burst to the surface imagining the police officer processing your (uhm) insurance card. Thank you for continuing to open a window for us into your ongoing journey. Peace, alicia b.c.alicia b.c.https://www.blogger.com/profile/15533957773957467184noreply@blogger.comtag:blogger.com,1999:blog-7291854236770250226.post-9806060069369134562013-02-28T11:44:32.580-08:002013-02-28T11:44:32.580-08:00Welcome back. Johan said you disappeared and there...Welcome back. Johan said you disappeared and therefore no proof of the Ampligen working - worked for you, huge discussion re same and others. Looking forward to updates and glad you posted on health Rising and you are enjoying life with the same humor. Gives HOPECheryl Bensonhttps://www.blogger.com/profile/12940520868873846884noreply@blogger.comtag:blogger.com,1999:blog-7291854236770250226.post-6182555520188398512013-02-07T10:39:38.434-08:002013-02-07T10:39:38.434-08:00Hey, stumbled upon your post while googling about ...Hey, stumbled upon your post while googling about ampigen in America.<br />I myself have been living with CFS for 11 years now, and here in Europe (Amsterdam more specifically) we have nothing like this. It gives hope for the future that there are things that actually work!<br />And then you end it with a video with music from my favourite band, I just had to comment.<br />Going to read more from your blog now, thank you for sharing all of this. It really does give a person hope for the future, so thank you for that <3<br />Love from AmsterdamAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-7291854236770250226.post-26236346687118800912013-01-28T20:02:12.378-08:002013-01-28T20:02:12.378-08:00Hi - just began reading your blog...i am so happy ...Hi - just began reading your blog...i am so happy for you - i do UV Photophoresis treatments in Phoenix for my CFS which basically is also completely under-utilized, it has the same basic principle as immune modulating drugs...i found writing extremely helpful too - wishing you continued success. www.chronicfatiguechronichope.blogspot.com - <br />i too feel guilty b/c i have seen great improvements and my treatments are out of pocket expense and very few people in the country do this...used extensively in Europe - all the best. hdhkdhttps://www.blogger.com/profile/03606859927429573387noreply@blogger.comtag:blogger.com,1999:blog-7291854236770250226.post-28485780522593120222012-12-03T21:35:30.855-08:002012-12-03T21:35:30.855-08:00Wow! What a passionate post, I can relate so much ...Wow! What a passionate post, I can relate so much to the family and doctors. It took me 10 years to even get diagnosed, I was treated for depression all that time including undergoing ECT (shock therapy)....very very terrible experience. <br /><br />About the cytokines, I don't really know much about it but am interested. About 2 years after becoming bedridden with CFS, I developed terrible unrelenting OCD that hasn't let up, even with all the different anti-depressants. I have always thought the CFS was causing it because I never had a hint of it prior to being ill. I guess these things will resolve if the ampligen does help? I will be the happiest person alive if the ocd ever goes away. christianahttps://www.blogger.com/profile/01832211106852860641noreply@blogger.comtag:blogger.com,1999:blog-7291854236770250226.post-88956138298757468402012-12-03T16:19:55.752-08:002012-12-03T16:19:55.752-08:00I am a bit concerned upon hearing this because I t...I am a bit concerned upon hearing this because I take several anti-depressants that are supposed to help raise serotonin levels. Do you know if there is a disclaimer b/w ampligen and certain anti-depressants? christianahttps://www.blogger.com/profile/01832211106852860641noreply@blogger.comtag:blogger.com,1999:blog-7291854236770250226.post-38377819537535506472012-12-03T08:08:56.575-08:002012-12-03T08:08:56.575-08:00I actually have nightmares all the time since gett...I actually have nightmares all the time since getting ill and remember them vividly when I'd actually prefer to not dream at all and not remember them. Weird how we all have different experiences. Also, since getting ill I am starving all the time and have met others with this problem, only females though, we tend to gain weight. christianahttps://www.blogger.com/profile/01832211106852860641noreply@blogger.comtag:blogger.com,1999:blog-7291854236770250226.post-79753332131047982492012-12-02T22:36:24.957-08:002012-12-02T22:36:24.957-08:00It is however very unfortunate for those of us who...It is however very unfortunate for those of us who got sick at such a young age and were never able to work. I can't take out a loan and have no money. Sure do hope they approve this soon. Nothing else has worked for me either so far and every few months I continue to go down hill, I fear ending up bedridden again. Thank-you for your blog, look forward to reading more of it. christianahttps://www.blogger.com/profile/01832211106852860641noreply@blogger.comtag:blogger.com,1999:blog-7291854236770250226.post-88605283973538175792012-12-02T22:23:18.853-08:002012-12-02T22:23:18.853-08:00Were you able to tolerate or not tolerate other CF...Were you able to tolerate or not tolerate other CFS treatments? I.E.: immunovir, LDN, anti-virals, equilibrant? I haven't been able to tolerate any of the above except for at the tiniest of doses which give me quite extreme side effects...... I am rather scared to try ampligen b/c of my extreme sensitivities and reactions, thus far I can only handle 1/8th of equilibrant 3x's a week..... I was unable to take any of the others. christianahttps://www.blogger.com/profile/01832211106852860641noreply@blogger.comtag:blogger.com,1999:blog-7291854236770250226.post-38933448032778524782012-11-19T13:31:00.231-08:002012-11-19T13:31:00.231-08:00Yes, and update on your health, better or worse, w...Yes, and update on your health, better or worse, would be great.HIphttp://chronicsorethroat.wordpress.com/noreply@blogger.comtag:blogger.com,1999:blog-7291854236770250226.post-73694365167480668072012-11-14T23:25:46.565-08:002012-11-14T23:25:46.565-08:00My husband has been I'll with ME/CFS for two y...My husband has been I'll with ME/CFS for two years now. We live in Canada with little treatment options and doctor support. We are considering doing the same as you, picking up and moving to the US for trial treatment. Thank you for your blog! It is very helpful. Would you be able to comment on your current status. It would help us in making our very dramatic decision to do the move. Thank you kindly. Lisanoreply@blogger.comtag:blogger.com,1999:blog-7291854236770250226.post-31954387053014712002012-08-12T13:51:58.723-07:002012-08-12T13:51:58.723-07:00I'd also be interested hearing why you chose A...I'd also be interested hearing why you chose Ampligen over Rituximab. Ampligen's been around for longer?chrishttps://www.blogger.com/profile/07101951435233323668noreply@blogger.comtag:blogger.com,1999:blog-7291854236770250226.post-40290152671098538402012-08-12T11:13:05.093-07:002012-08-12T11:13:05.093-07:00Thanks Kevin, very much appreciated and will be fo...Thanks Kevin, very much appreciated and will be following. Good Luck.FuBarhttps://www.blogger.com/profile/18207274426321087529noreply@blogger.comtag:blogger.com,1999:blog-7291854236770250226.post-24081326460420160302012-03-28T07:24:51.988-07:002012-03-28T07:24:51.988-07:00Hi
It's been a year since last post, just won...Hi<br /><br />It's been a year since last post, just wondered how you are now Kevin?<br />Regardscornwallhttps://www.blogger.com/profile/13288411600392788226noreply@blogger.comtag:blogger.com,1999:blog-7291854236770250226.post-65190324375057523842011-12-04T23:19:27.541-08:002011-12-04T23:19:27.541-08:00Hey Kelvin, I am thinking about giving ampligen a ...Hey Kelvin, I am thinking about giving ampligen a shot and wanted to ask you a couple of questions...can you send me an email at alexk201@gmail.com so that we can start a convo<br /><br />Thanks Alot!!!!!Alexk201https://www.blogger.com/profile/16066982682443352189noreply@blogger.comtag:blogger.com,1999:blog-7291854236770250226.post-31301811729309876742011-10-24T18:45:48.279-07:002011-10-24T18:45:48.279-07:00What a crock of shit! Google Ampligen in the Pink!...What a crock of shit! Google Ampligen in the Pink!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7291854236770250226.post-24915256902489556172011-10-09T08:20:51.855-07:002011-10-09T08:20:51.855-07:00How are you now?How are you now?Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7291854236770250226.post-18534255288737929492011-07-21T19:46:12.284-07:002011-07-21T19:46:12.284-07:00To the post above. You could contact either dr Der...To the post above. You could contact either dr Derek Enlander in NY or dr Charles Lapp in Charlotte directly since they both administer ampligen as part of the trial. It's via them the contact about the trial takes place. Good luck!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7291854236770250226.post-40550098427128429622011-07-18T08:43:39.870-07:002011-07-18T08:43:39.870-07:00Anyone who wants to be considered for Ampligen and...Anyone who wants to be considered for Ampligen and is willing to move to the USA for 6 months to 1 year, should contact Dr. Peterson in Nevada or Dr. Lapp in North Carolina. They then do the testing, forms, and application with Hemispherx. You wait about 3 weeks for Hemispherx to approve you, and send the Ampligen to the doctor on ice. Contact Wendy Fallick here for more information: http://www.drlapp.net/Kelvin Lordhttps://www.blogger.com/profile/15444830152654364397noreply@blogger.comtag:blogger.com,1999:blog-7291854236770250226.post-60632532390507473162011-07-14T15:44:57.639-07:002011-07-14T15:44:57.639-07:00Dude you are da man!! Seriously, I am sorry that y...Dude you are da man!! Seriously, I am sorry that you have been going through this crap! I too have CFS/Fibro, so I feel ya baby...I really do! But you made me giggle so hard my eyes were leaking!! Thanks for that!! I pray for this treatment of Ampligen, I'm such a frakin zombie with noooo life. How does a person,such as myself, get this treatment?? I'm on disability, so there is a huge cash problem. But I feel if I don't get help soon I will NOT be on this Earth for much longer.godduss73https://www.blogger.com/profile/07519116279076131862noreply@blogger.comtag:blogger.com,1999:blog-7291854236770250226.post-91787919717855666672011-06-30T22:04:43.124-07:002011-06-30T22:04:43.124-07:00Hi Billo:
I posted a response to your question an...Hi Billo:<br /><br />I posted a response to your question and it disappeared? I have a lot of trouble with these blogs, obviously. <br /><br />My doctor is Dan Peterson at Incline Village.<br />I was first on Ampligen at the end of 1997. My testimony is on the internet and I thought on this blog? That was from the 1998 conference in Cambridge, Mass. You can google my name and it will come up, I think? <br /><br />I was on Ampligen for 18 months and did extremely well......until........I purchased a new home and it had standing water under it - surprise! MOLD.....the toxic black stachy along with many others. I had to go to stay with family in New Orleans and I got worse, total relapse. I was working then - part time jobs and ended up horribly ill again. New Orleans is NOT a good place for someone with my symptomology.<br /><br />I came back to Dr. Peterson and did another 18 months of Ampligen and once again, I did extremely well. Financially I had been destroyed and immediately went back to work...an extremely difficult job and had to make two more moves (moved 11 times since 1997)<br />and I could "feel" myself sinking. I managed to get through another 7 years and am back on Ampligen - at the 6 month mark right now. I'll be on for a total of 18 months again. There is no doubt it is once again effective, although I'm older, had to move AGAIN and am not in good shape. I was very concerned - would it work again? The answer is YES.......I know the drug well and can tell by how I'm reacting and had three excellent days last week. I'm alone and must care for myself, so I tend to try to make up for lost time and get a bit carried away, only to tell myself how dumb that was, but all in all, a definite positive trend. This drug has been an absolute miracle for me. <br /><br />Wishing you the same outcome.....hang in there, sometimes it's not easy, but keep your focus on the outcome. It's well worth it!!!!<br /><br />Linda BarossiAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-7291854236770250226.post-7153472252820604132011-06-28T10:55:48.515-07:002011-06-28T10:55:48.515-07:00Hi,
How did you manage to get into the Ampligen t...Hi,<br /><br />How did you manage to get into the Ampligen trial? I have tried to contact Hemispherx Biopharma via e-mail few times, but they haven't responded. At first I thought they aren't interested in foreign participants, but then I found your blog and realized that you have come to U.S from half a world away.<br /><br />If you can give any advise how to get into those trials, could you please contact me. My e-mail address is niemelatimo@hotmail.com. <br /><br />Thanks.<br /><br />-A very desperate CFS/ME -patient from FinlandAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-7291854236770250226.post-30510707531655612822011-06-27T18:44:26.798-07:002011-06-27T18:44:26.798-07:00Well folks, it's pretty much a done deal now. ...Well folks, it's pretty much a done deal now. I even have a house exchange with someone in Charlotte. So my wife and I will spend the year there, and they will take our house here in Pittsburgh. It's kins of funny that the person coming here is also going to take over teaching my courses at Pitt, while we will staying in his apartment in Charlotte. So it works out well for both of us.<br /><br />I'll keep you all posted on my progress here on the Ampligen Diaries II. Thanks for the good wishes from all of you, and especially from Kelvin Lord for putting up this website, which more than anything I've read in all the anecdotal postings on the web, both praising and vilifying Ampligen, is most responsible for my finally deciding after all these years -- and even after to talking to Dr. Carter, Ampligen's inventor, himself at one point -- to bite the bullet and the cost and try to get my life back with the still largely unknown Ampligen treatments! <br /><br />Linda, where are you being, or were you, being treated for 6 months? It sure sounds like it is working for you as well as Kelvin. Please share a few of the details with us if you feel comfortable doing so.Billonoreply@blogger.comtag:blogger.com,1999:blog-7291854236770250226.post-30581966094604305502011-06-27T08:46:25.511-07:002011-06-27T08:46:25.511-07:00Dr. Laura Black is with Dr. Charles Lapp in Charlo...Dr. Laura Black is with Dr. Charles Lapp in Charlotte, NC. They are also known as the Hunter-Hopkins Clinic. This is where I received Ampligen in 2010. http://www.drlapp.net/ Call the office and ask for Wendy Fallick- she is in charge of drug trials like Ampligen. <br /><br />""We are built for the valley, for the ordinary stuff we are in, and that is where we have to prove our mettle." <br />Oswald ChambersKelvin Lordhttps://www.blogger.com/profile/15444830152654364397noreply@blogger.comtag:blogger.com,1999:blog-7291854236770250226.post-27322123451653521402011-06-27T08:42:21.607-07:002011-06-27T08:42:21.607-07:00Billo:
Where is Dr. Black located - what city?
L...Billo:<br /><br />Where is Dr. Black located - what city?<br /><br />LindaAnonymousnoreply@blogger.com